Canadian Fontan Biobank, Canada

Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties
Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group
Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper

Registration Status: Completed

Objective: Canadian adults living with congenital heart disease are a growing, diverse, and complex population. Specifically, individuals who have had a Fontan procedure are living into adulthood and present with new, complex cases to clinics across Canada. The Fontan Biobank collects blood and urine samples from this population to better understand underlying comorbidities and predict future risk.

Registered Biobank Name	Canadian Fontan Biobank
Biobank Leader	Mikyla Janzen
Country	Canada
Email for biobank inquiries	mjanzen@providencehealth.bc.ca
Principal Investigator	Dr. Jasmine Grewal
User Type Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper

Biospecimen Collected: