The Dynamic interplay between bleeding phenotype and baseline factor level in moderate and mild hemophilia A and B (the DYNAMO study), Netherlands
Objective: The DYNAMO biobank contains left-over material collected in the context of the DYNAMO study. The DYNAMO study is an international multicenter study investigating the association between FVIII and FIX plasma levels and the bleeding phenotype. Data is collected on demographics, physical activity levels, musculoskeletal status, genotype, measured factor levels (both one-stage and chromogenic), the nature and duration of all bleeding episodes, type of treatment and treatment response. Central laboratory measurements will be performed for FVIII or FIX levels.
|Registered Biobank Name||The Dynamic interplay between bleeding phenotype and baseline factor level in moderate and mild hemophilia A and B (the DYNAMO study)|
|Biobank Leader||Dr. C.J. Fijnvandraat|
|Email for biobank email@example.com|
|Principal Investigator||Dr. Shannon Jackson (Vancouver site), Dr. C.J. Fijnvandraat (leading site at Amsterdam)|