The Dynamic interplay between bleeding phenotype and baseline factor level in moderate and mild hemophilia A and B (the DYNAMO study), Canada

Registration Status: Completed

Objective: The DYNAMO biobank contains left-over material collected in the context of the DYNAMO study. The DYNAMO study is an international multicenter study investigating the association between FVIII and FIX plasma levels and the bleeding phenotype. Data is collected on demographics, physical activity levels, musculoskeletal status, genotype, measured factor levels (both one-stage and chromogenic), the nature and duration of all bleeding episodes, type of treatment and treatment response. Central laboratory measurements will be performed for FVIII or FIX levels.

Registered Biobank Name The Dynamic interplay between bleeding phenotype and baseline factor level in moderate and mild hemophilia A and B (the DYNAMO study)
Biobank Leader Ming Yang
Country Canada
Email for biobank inquiries c.j.fijvandraat@amc.nl
Principal Investigator Dr. Shannon Jackson (Vancouver site), Dr. C.J. Fijnvandraat (leading site at Amsterdam)
User Type
  • Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties
  • Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group
  • Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper
Biospecimen Collected: