The Canadian Lipoprotein (a) Registry: a prospective multisite observational study to optimize the care of patients with inherited risk of cardiovascular disease, Canada

Registration Status: Completed

Objective: Lp(a) Registry is designed as a biobank focused on prospective, longitudinal study of patients with elevated Lp(a) levels and assessing their co-existing cardiovascular risk factors and their management. The ultimate goal of the registry is to understand the characteristics, patterns of treatment, and clinical outcomes, and determinants of risk of Canadian patients with elevated Lp(a). Participants will be recruited at 3 centers, with Healthy Heart Program at St. Pauls Hospital, Vancouver as main center; the other 2 centers are cardiac Clinics also located in Vancouver. Once, Registry is established here in BC, the other centers across BC and Canada will join. Participants will be enrolled in the study indefinitely and therefore data collected longitudinally coincide with clinically-indicated visits. Clinical data, laboratory results, cardiovascular events and imaging data will be collected.

Registered Biobank Name The Canadian Lipoprotein (a) Registry: a prospective multisite observational study to optimize the care of patients with inherited risk of cardiovascular disease
Biobank Leader Luba Cermakova
Country Canada
Email for biobank inquiries lcermakova@providencehealth.bc.ca
Principal Investigator Dr. Liam Brunham
Website
User Type
  • Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties
  • Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group
  • Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper
Biospecimen Collected: