eyeGENE(R) - NIH/NEI, United States

Registration Status: Pending

Objective: The National Ophthalmic Disease Genotyping and Phenotyping Network (eyeGENE) is a research venture created by the National Eye Institute (NEI), part of the National Institutes of Health (NIH), in response to promising scientific discoveries in genetics. eyeGENE aims to advance studies of eye diseases and their genetic causes by giving researchers access to DNA samples, clinical information, and patients looking to participate in research studies and clinical trials.

Registered Biobank Name eyeGENE(R) - NIH/NEI
Biobank Leader Kerry Goetz
Country United States
Email for biobank inquiries eyegeneinfo@nei.nih.gov
Principal Investigator Brian Brooks
Website nei.nih.gov/eyegene
User Type
  • Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties
  • Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group
  • Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper
 Poly - Collection aimed at supporting undetermined, multiple users with ethics approved research projects, through a defined access/application mechanism.
Biospecimen Collected:
Cohort Highlights