International Sarcoma Kindred Study Database and Biospecimen Repository, Canada
Objective: The purpose of this study is to create a large genetic, biological, epidemiological and clinical resource that will enable researchers to answer important questions relating to the hereditary characteristics of sarcoma. a. Primary Objective - To establish an international database and biospecimen repository to be used as a clinical and research resource. b. Secondary Objective - To utilise the International Sarcoma Kindred Registry to develop clinically useful, populationÃ¢â‚¬Âbased criteria for stratifying genetic or hereditary risk for adultÃ¢â‚¬Âonset sarcoma. - To evaluate community attitudes to genetic research - To make available the International Sarcoma Kindred Registry to researchers.
|Registered Biobank Name||International Sarcoma Kindred Study Database and Biospecimen Repository (ISKS)|
|Biobank Leader||Beth Gentleman|
|Email for biobank firstname.lastname@example.org|
|Principal Investigator||Dr. Paul W. Clarkson|
||Poly - Collection aimed at supporting undetermined, multiple users with ethics approved research projects, through a defined access/application mechanism.|