National Disease Research Interchange (NDRI), United States

Registration Status: Pending

Objective: NDRI maintains several bioinventories which focus on rarer disease specimens that are more challenging to procure prospectively. Our Logistics facility is accredited by the College of American Pathologists (CAP) as a biorepository. We maintain compliance with biomaterials handling regulations for storing and shipping samples to approved researchers. Our biorepository includes: • Tissues across body sites from donors with diseases such as HIV, glioblastoma, and cystic fibrosis Surgical Discard Inventory, including excised samples from living donors who had surgical removal of tissue, such as cancerous tumors • Alzheimer’s Disease/Alzheimer’s Disease-Related Dementia Brain Inventory, with whole brains from donors with diagnosed or undiagnosed Alzheimer’s Disease • Ocular Slide Inventory, including whole globes, posterior pole, cornea, aqueous, vitreous, and lens • LAM-TR Inventory, with tissues from donors with rare lung disease, Lymphangioleiomyomatosis (LAM)

Registered Biobank Name National Disease Research Interchange (NDRI)
Biobank Leader Azra Hasan, PhD
Country United States
Email for biobank inquiries ahasan@ndriresource.org
Principal Investigator Melissa VonDran, PhD; Azra Hasan, PhD
Website
User Type
  • Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties
  • Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group
  • Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper
Biospecimen Collected:
Cohort Highlights